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Resources for Patients

There are a range of support programs and groups available for patients with Lipoedema.  Some of these support programs are outlined below.

Please follow the links in each section for the most up-to-date information.  Feel free to let us know if there are any other programs or services that would be worthwhile adding to this list.

Chronic Disease Managements Plans

A Chronic Disease Management is a GP service available on the Medicare Benefits Schedule (MBS), which enable GPs to plan and coordinate the health care of patients with chronic medical conditions, including patients with these conditions who require multidisciplinary, team-based care from a GP and at least two other health or care providers.

Recommended allied health providers for Lipoedema patients may include:

  • Physiotherapist for manual lymphatic drainage (MLD) and compression prescription;
  • Podiatrist to help with gait issues;
  • Exercise physiologist to help with strengthening knees and core, assist with rehabilitation, improve fitness and assist with weight loss;
  • Occupational therapist for patients with mobility impairment; and/or
  • Dietitians and nutritionists may be helpful in assisting Lipoedema patients to determine a suitable nutrition plan that includes anti-inflammatory focus, low carb and high fat foods, clean eating (no additives). Further, literature recommends avoiding caloric restriction as this can worsen Lipoedema.

Mental Health Care Plan

A mental health care plan is a plan for people with a mental health disorder, such as depression, anxiety, body dysmorphia or eating disorders.  The patient may be entitled to Medicare rebates, coordinated by their GP, for up to 10 individual or group appointments with a psychologists, occupational therapist or social worker.

Find out more here: https://www.healthdirect.gov.au/mental-health-care-plan

Compression Garment Schemes (State Based).

Patients that suffer with secondary Lymphodema may be eligible for the provision or subsidy of compression garments.  The eligibility, subsidy and prescriber guidelines differs between states.  A comprehensive list of state-based subsidies can be found on website of the Australian Lymphology Association.  Patients are encouraged to do their own research regarding what they may be entitled to and who is the best doctor or therapist to prescribe their compression garment scheme.

Find out more here: http://www.lymphoedema.org.au/about-lymphoedema/compression-garment-schemes/

Documentation for Private Health Insurance

Patients may be eligible for rebates towards equipment and services from their private health insurer to assist with the management of their chronic disease and associated pain.  Rebates may cover items such as compression garments, mobility aids or a sequential intermittent pneumatic compression therapy pump. Patients are encouraged to discuss their condition and rebate eligibility with their insurer directly and also work with their GP for necessary documentation.

Disabled Parking Permit

Dependent on state-based rules, a disabled parking permit may be appropriate for patients with advanced Lipoedema who suffer with pain and who have mobility issues.  Patients should discuss eligibility with their GP; as well as research the rules for obtaining a permit with their local department of roads and transport authority.

Lipoedema UK Survey – Results Preview

A survey by charity Lipoedema UK highlights that a bleak future could await UK women with a debilitating condition called Lipoedema because life-changing treatments and surgery are not available on the NHS. Many risk their future and that of their family by taking out loans and spending savings to finance private treatments.

Read more about the preview results of the 2019 Lipoedema UK survey report on their website

OR

download the preview results now.